Appendix D

The Stay/Change/Stop Conversation

Treatment decisions become clearer when benefit, risk, burden, and goals are discussed separately. This guide prepares that conversation for a routine review, an unexpected event, or a decision about stopping; it does not direct anyone to alter or stop treatment without the prescribing clinician.

Written by David Shusterman, MD, board-certified urologist. Adapted from TRT Unlocked.

Treatment decisions become clearer when benefit, risk, burden, and goals are discussed separately. This guide prepares that conversation; it does not direct anyone to alter or stop treatment without the prescribing clinician.

Return to the original reason

Write down the original diagnosis and cause statement, the target symptom or function, a baseline example of its severity, what change would count as meaningful, a current example (better, unchanged, worse, or unclear), and other treatments or life changes that may explain it. A laboratory value does not replace the clinical outcome that justified the exposure.

Reasons staying may make sense

Reasons a change may make sense

A change should solve a named problem, not stand in for escalation. A new formulation brings new instructions, exposure pattern, and monitoring.

Record the problem the change solves, the new burden it creates, and how and when it will be judged.

Every standard formulation suppresses fertility, and each brings its own burdens: gel carries transfer risk, injections bring needles and peaks and troughs, pellets cannot be adjusted once placed, nasal is short-acting but not fertility-safe without semen measurement, and compounded products are not equivalent to approved ones. The current label governs use.

Reasons a pause or stop may make sense

Record the reason, the risks of continuing, the expected symptoms of stopping, specialist input needed, and the clinician's supervised plan. Product clearance, symptom change, hormone recovery, and sperm recovery follow different courses; understand that before a stop date is set.

Do not wait for the routine date

Emergency symptoms need emergency care, not a message for a future visit.

If the answer remains uncertain

Uncertainty does not require automatic continuation or abrupt discontinuation. A time-limited next step is reasonable when everyone knows what will settle the question and when: the specific uncertainty, the endpoint to observe (symptom, laboratory, semen, safety), the review point, the finding that would favor each choice, and the risk that should end the trial early.

Decision summary

Record the decision today (stay, change, pause, stop, or more evaluation), the main reason, the important uncertainty, the fertility consequence, any safety issue or referral, the next review, and the clinician responsible.

Common questions

How do I know whether I should stay on TRT, switch products, or stop?

Discuss benefit, risk, burden, and goals separately, starting from the original target symptom and a baseline example of its severity. Staying makes sense when the diagnosis remains credible, the symptom improved meaningfully, exposure is interpretable, safety is acceptable, fertility goals fit, and the routine is sustainable. A change should solve a named problem, and a stop is considered when benefit is absent, the diagnosis is weak, safety or fertility changes the balance, or you no longer want treatment.

What symptoms on TRT should not wait for my next scheduled visit?

Emergency symptoms need emergency care: new chest pressure, stroke symptoms, fainting, severe shortness of breath, sudden severe scrotal pain or a testicular mass, severe headache with visual change, marked blood-pressure change or new swelling, worsening sleep apnea, urinary retention or blood in urine, a new clot or cardiovascular event, a new cancer diagnosis, or a serious psychiatric change. Fertility becoming time sensitive and product or supply changes also warrant prompt contact.

Diagnosis before optimization.

That is the whole book in three words. If you want the complete version, with the case examples and the checklists, it's in TRT Unlocked.

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